Rare Voices Australia (RVA)
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Rare Voices Australia is the unified voice for all Australians living with a rare disease.
The primary objective of Rare Voices Australia is to unite and represent the interests of all Australians living with a rare disease or disorder.
Our immediate aim is that of increasing both public and political awareness of the burden of rare disease, the ultimate aim is to achieve better outcomes nationally for those whose lives are impacted by rare diseases.- Website
- http://www.rarevoices.org.au/
- Sector:
- Not For Profit
- Type
- Charity
- Regions
- Australia
- Medical Conditions
- Adrenoleukodystrophy
- Androgen Insensitivity Syndrome
- Cardiomyopathy
- Cornelia de Lange Syndrome
- Fragile X Syndrome
- Klinefelter syndrome
- Marfan syndrome
- Treacher Collins Syndrome
- Patau syndrome
- Alpha 1-antitrypsin deficiency
- Arnold–Chiari malformation
- Behçet's disease
- Charcot–Marie–Tooth disease
- Craniosynostosis–anal anomalies–porokeratosis syndrome
- Ehlers–Danlos syndrome
- Friedreich's ataxia
- Huntington's disease
- Selective immunoglobulin A deficiency
- Prader–Willi syndrome
- Rubinstein–Taybi syndrome
- Smith–Magenis syndrome
- Edwards syndrome
- Phenylketonuria
- Related Topics
- Rare Disease
- Key People
- Head of organisation: Ms Megan F FOOKES
Practice Locations
NSW
- Address
- Rare Voices Australia
Suite 2
3 The Postern
Castlecrag NSW 2068
Australia
- Phone
- 02 9967 5884
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