Association of Genetic Support of Australasia (AGSA)
The Association of Genetic Support of Australasia facilitates support for those affect directly or indirectly by rare diseases (80% of which are genetic in origin). We offer a wide range of support options, including seminars, sibling workshops, networking and peer support events with other carers, telegroup counselling and annual information days.
AGSA is recognized as a peak body in patient support and collaborates with similar organisations and health professionals both nationally and internationally. We have a rare disease register representing over 1200 rare conditions which enhances the ability for contact between families, individuals and support groups.
- Website
- http://www.agsa-geneticsupport.org.au/
- Regions
- Australia
- Asia
- Medical Conditions
- Adrenoleukodystrophy
- Albinism
- Androgen Insensitivity Syndrome
- Angelman syndrome
- Cardiomyopathy
- Congenital Adrenal Hyperplasia
- Cornelia de Lange Syndrome
- Facioscapulohumeral Muscular Dystrophy
- Fragile X Syndrome
- Klinefelter syndrome
- Marfan syndrome
- Neurofibromatosis
- Alpha 1-antitrypsin deficiency
- Behçet's disease
- Charcot–Marie–Tooth disease
- Ehlers–Danlos syndrome
- Friedreich's ataxia
- Huntington's disease
- Selective immunoglobulin A deficiency
- Muscular dystrophy
- Prader–Willi syndrome
- Rubinstein–Taybi syndrome
- Smith–Magenis syndrome
- Patau syndrome
- Edwards syndrome
- Related Topics
- Genetics
- Clinical genetics
