Batten Disease Association
The Batten Disease Association is an organisation dedicated to improving the well-being of patients and families suffering from Batten disease, a severe and progressive inherited neurological disorder that primarily affects children and young persons. It is one of a group of about 50 disorders collectively known as lysosomal storage disorders. Batten disease primarily affects brain function, leading to the loss of learned skills such as walking, talking and feeding, behavioral problems such as aggression, and severe sleep deprivation. Families with a person affected by Batten Disease therefore require significant support
- Website
- http://www.battens.org.au/
- Phone
- 0418236610
- Sector:
- Not For Profit
- Type
- Charity
- Health Consumer
- Medical Research
- Regions
- Australia
- Medical Conditions
- Batten disease
- Related Topics
- Rare Disease
